Long Covid Alters Life for Young People as School Year Ends

As the school year comes to a close for many children and teenagers, a significant number are facing challenges stemming from Long Covid and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). These conditions, which can dramatically alter daily life and personal identity, present obstacles that extend beyond the classroom.

The impact of Long Covid is particularly pronounced for young people. Research conducted since 2021 indicates that children who have contracted Covid-19 are more likely to miss school and other usual activities compared to their peers who have not been infected. Specifically, the data shows that **52 percent** of young individuals with a history of Covid-19 report missing school at least some of the time, compared to **42 percent** of those without the virus. This difference is statistically significant and highlights the ongoing effects of Long Covid.

Social Lives and Dependencies Shift

For many young people, the restrictions imposed by these chronic conditions can heavily influence their social interactions and sense of independence. While their peers are engaging in activities typical of youth, such as part-time work and social outings, those affected by Long Covid or ME/CFS often find their energy reserves severely limited. This leaves them with little to no capacity for socializing, as they prioritize school obligations.

Teenager **Caitlin** shared her experience, stating, “Having Long Covid/CFS puts a layer of complexity over everything in my life. I’m constantly juggling the things I want to do and deciding which I will manage. I’d love to have a part-time job like my friends, but my health makes that really tricky.” Caitlin’s challenges reflect a broader trend among young people struggling with these conditions, where the pursuit of independence is often overshadowed by health-related constraints.

Parents and caregivers are also significantly affected by these realities. Witnessing a child struggle with debilitating symptoms can lead to emotional distress and practical challenges, including the necessity for one parent to reduce work hours or quit their job altogether to provide care. This can exacerbate financial strains, compounded by repeated medical visits and the costs associated with treatments and medications that may not yield clear results.

Addressing Misunderstandings and Stigma

A critical issue highlighted in the research is the lack of understanding and support from some healthcare providers. Many families report feeling unheard, with doctors sometimes misinformed about the nature of Long Covid and ME/CFS. This gap in knowledge can lead to further complications, leaving affected individuals without adequate support or treatment options.

Severe cases of these conditions can result in patients being bed-bound for extended periods, often facing challenges such as light and sound sensitivity. This isolation can prevent meaningful engagement with the outside world, with some individuals relying on feeding tubes for nutrition and requiring assistance for basic needs.

As public discourse surrounding Covid-19 evolves, it remains essential to promote prevention measures to reduce the risk of new infections. Effective strategies include encouraging individuals to stay home when unwell, improving indoor ventilation, and the ongoing promotion of vaccination. These measures are crucial in minimizing the incidence of Long Covid, particularly among young people.

In early 2024, a guide for general practitioners will be launched to aid in the diagnosis and management of Long Covid. For those seeking further assistance, several organizations offer valuable resources, including the **Associated New Zealand ME Society**, **Long Covid Kids**, and **Long Covid Support Aotearoa**.

The challenges posed by Long Covid and ME/CFS are profound and multifaceted, impacting not just the affected individuals but also their families and communities. Addressing these issues requires a concerted effort from healthcare providers, educators, and society at large to foster understanding and support for those navigating these complex conditions.